Resources

I decided to put together a list of companies that have products or services that we have used.  This is NOT a recommendation.  This is simply what we have found helpful to the care and/or quality of life for our son.  Some of the items on this list we found out about from other families and/or nurses that have worked with us.  This allowed us to research and approach our doctors to make an educated decision about what was appropriate for our son.  It is my hope, along with my son's, that there may be an item on this list that someone may be able to learn about to improve their care or quality of life.

If you have one that you feel is beneficial we would love to hear from you. Please send me the information and I will consider adding it to my list.

lemonadeandporcupines@gmail.com

Equipment:

• Freedom Concepts F uses a chillout chair Click on the "products" tab for a drop-down list of all of their products. This company also has great customer service
• ATG Rehab  F has had ATG as a vendor for years.  He has been fortunate to work with the same wheelchair guy since he was 5 years old.

• AT/AAC:

• Dynavox Speech Devices F trialed in November a Maestro.  It worked seamlessly with two proximity switches he utilizes with his head. We are currently awaiting the delivery of his device.
• Touchchat for iPad or iPhone - This program has proved invaluable focus.  It is our low tech method of communication.  The iPad doesn't use switches so we use this in place of our flip book to assist us in being better assistance to Forrest.  I have it on my iPad and my iPhone. 

Educational:

• Bookshare Accessible Books and Periodicals for read with print disabilities
• Read2go - This works with Bookshare audio books.  

DME items:

• Sage Products for Oral Care  We use product # 6071 Click on the link "oral hygiene catalog"  you will find a large selection of their products.  I called the company when we needed to switch our toothettes from the treated type (sugar wasn't good for his Modified Atkins diet).  They sent us a very nice care package with samples of many of their products. They have excellent customer service as far as I'm concerned.
• The Vest by Hill Rom - this item in conjunction with postural drainage has helped our son find relief from his lung secretions.  Due to his disabilities and lack of movement he has a hard time clearing his secretions. 
• Volkner Turning Mattress Not only does this air mattress relieve pressure.  We turn it on during the night to rotate him from side to side.